Overview of current clinical registries

 Directory of registries

ALN AFME

Database of patients with chronic myeloid leukaemia (CML) for the Arab Leukaemia Network.

Amadeus

Clinical registry of patients suffering from age-related macular degeneration (AMD) or diabetic macular oedema (DMO) who have been treated with anti-VEGF medications.

ATTRA

Multicentric system for the assessment of the progress and results of biological therapy of ankylosing spondylitis, juvenile idiopathic arthritis, psoriatic arthritis, rheumatoid arthritis, and systemic lupus erythematosus.

BIOMARKERY PANKREAS

Evaluation of efficacy of new spectroscopic biomarkers for the detection of early-stage pancreatic cancer.

Breast

Clinical registry of breast cancer patients who have been treated with trastuzumab (Herceptin®), lapatinib (Tyverb®), bevacizumab (Avastin®) and/or everolimus (Afinitor®).

CAMELIA – Chronic MyEloid LeukaemIA

International clinical registry of patients with chronic myeloid leukaemia.

CAR

Registry of patients suffering from severe persisting allergic asthma who have been treated with omalizumab (Xolair®).

Cervix.cz – Cervical Cancer Screening Programme in the Czech Republic

System of informational support for the Cervical Cancer Screening Programme in the Czech Republic.

CHOPIN – Chronic pain neuromodulation

Clinical registry of neuromodulation techniques applied in patients suffering from chronic pain.

CHOPN

Non-interventional multicentre observational prospective database focusing on the collection and analysis of data on real mortality and morbidity in an unselected population of COPD patients.

CLLEAR

Clinical registry of patients with chronic lymphocytic leukaemia (CLL).

Corect

Clinical registry of colorectal cancer (CRC) patients who have been treated with cetuximab (Erbitux®), bevacizumab (Avastin®) and/or panitumumab (Vectibix®).

CREDIT – Czech registry of IBD patients on biological therapy

Non-interventional multicentre retrospective and prospective longitudinal monitoring of patients with inflammatory bowel disease (IBD) who have been treated with biological therapies.

CyRUS – Cystectomy Registry of the Czech Urological Society

Clinical registry monitoring cases of bladder cancers treated with cystectomy and consecutive treatment.

Czech National Haemophilia Programme (CNHP)

The Czech National Haemophilia Programme (CNHP) is a non-interventional multicentre prospective study which monitors inherited haemorrhagic disorders: haemophilia, von Willebrand's disease and other haemorrhagic disorders.

DAFALL – Database of Food Allergy

Clinical registry of patients with food allergies.

DATOOL AML

Clinical registry of patients with acute myeloid leukaemia (AML).

DoIT!

Non-interventional, multicentre, retrospective and prospective study of patients with brain tumours, who have been treated in the Czech Republic according to the common clinical practice.

EMPIRE

Clinical registry of patients with idiopathic pulmonary fibrosis (IPF).

EndoMAZE HYBRID

Detailed assessment of safety and efficacy of hybrid ablation of persistent and long-standing persistent atrial fibrillation using a combined (hybrid) approach – surgical thoracoscopic epicardial ablation and a subsequent complex cardiological endocardial ablation.

EPOSS

Multicentre research database for implementation of parametric monitoring of severe sepsis treatment directly in clinical practice.

ERICA

Multicentre, national, observational, non-interventional, prospective study of paediatric patients with an acute infection of respiratory tract who have been treated with Erdomed.

FAP – Familial Adenomatous Polyposis

Clinical registry of patients with familial adenomatous polyposis (FAP).

FIND

Clinical registry of haemato-oncological patients in which antimycotic therapy has been administered.

HARM

Multicentre, non-interventional, retrospective and prospective monitoring of patients with chronic HCV infection who have been treated with direct-acting antiviral agents (DAAs) or with standard therapy.

IKTA.CZ

Nationwide registry of stroke patients: a non-interventional multicentre prospective study.

Infinity

Clinical registry of patients with chronic myeloid leukaemia (CML).

KARDIO-ICD – Registry of implantable cardioverter-defibrillators (ICD)

A central registry dealing with the implantation of implantable cardioverter-defibrillators (ICD).

KATAB – Registry of catheter ablations

A central registry dealing with catheter ablations.

KELLY

Registry of EGFR mutation testing results in patients with non-small-cell lung cancer (NSCLC) in the Czech Republic.

Kolorektum.cz – Colorectal Cancer Screening Programme in the Czech Republic

System of informational support for the Colorectal Cancer Screening Programme in the Czech Republic.

Magister

Central Czech registry of morphologically examined breast cancers, with particular emphasis on the collection of data regarding the examination of HER2/neu status in the Czech population.

Mamo.cz – Breast Cancer Screening Programme in the Czech Republic

System of informational support for the Breast Cancer Screening Programme in the Czech Republic.

MIND

Clinical registry of patients with myeloproliferative disorders.

MyReg – MYasthenia gravis REGistry

Registry collecting data on patients with myasthenia gravis, a rare autoimmune neuromuscular disorder

NET – NEuroendocrine Tumours

Český registr neuroendokrinních nádorů.

NSCLC stage III

International clinical registry gathering data on the management of patients with non-small cell lung cancer (NSCLC) who were diagnosed at the clinical stage III.

OBAAMA-INT

Prospective observational multinational multicentre study aiming to cover all health care facilities providing anaesthesia in the peripartal period in the Czech Republic and Slovakia, thus getting the most accurate image possible about this segment of anaesthesiology.

OVARIA

Clinical registry of ovarian cancer patients who have been treated with bevacizumab (Avastin®) and/or olaparib (Lynparza®).

Paediatric Oncology

Parametric collection of basic clinical data on paediatric cancer patients, interactive analytical reports.

Pemetrexed

Clinical registry of pleural mesothelioma patients who have been treated with pemetrexed (Alimta®).

PID – primary immunodeficiency database

Non-interventional, multicentre, prospective study monitoring the development and treatment of congenital dysfunctions of the immune system.

POPE

Clinical registry of patients with chronic obstructive pulmonary disease (COPD) in Central and Eastern Europe.

Prague 18

Randomised trial comparing the effectiveness of ticagrelor and prasugrel in patients with ST segment elevation myocardial infarction (STEMI) who have been treated with primary PCI.

PROPEL – Prospective Registry Of ParEnteraL prostanoids

Registry of PAH (pulmonary arterial hypertension) patients who have been treated with parenteral prostanoids.

ReACH – Achondroplasia Registry

Clinical registry of patients with achondroplasia.

REaDY – REgistry of muscular DYstrophies

REaDY (REgistry of muscular DYstrophies) is a clinical registry of patients suffering from Duchenne/Becker's muscular dystrophy (DMD/BMD), spinal muscular atrophy (SMA), myotonic dystrophy (DM) or facioscapulohumeral muscular dystrophy (FSHD).

REDNUP – registry of home nutritional support

Registry of paediatric and adult patients with home-administered parenteral nutrition.

reGISTer

Clinical registry monitoring the epidemiology of gastrointestinal stromal tumours (GIST) as well as therapeutic approaches and treatment results in GIST patients in the Czech Republic and Slovakia.

RenIS

Clinical registry of kidney cancer patients who have been treated with bevacizumab (Avastin®), everolimus (Afinitor®), pazopanib (Votrient®), sorafenib (Nexavar®), sunitinib (Sutent®) and/or temsirolimus (Torisel®).

REPACE – Registry of pacemakers

A central registry dealing with the implantation of pacemakers.

REPAR

Czech nationwide registry of patients who have been treated with growth hormone.

REPLY

Clinical registry focused on non-interventional monitoring of patients with pulmonary hypertension.

RESET

Clinical registry of patients suffering from sellar tumours.

RMG – Registry of Monoclonal Gammopathies

International clinical registry of patients with monoclonal gammopathies.

Simplify

Clinical registry of patients who have undergone autologous stem cell transplantation and who have been treated with plerixafor.

SONAR

Registry of patients with first acute ischaemic stroke of the carotid circulation with permanent neurological deficit.

TAVI

Clinical registry collecting data on patients who have undergone transcatheter aortic valve implantation (TAVI).

Tulung

Clinical registry of non-small cell lung cancer (NSCLC) patients who have been treated with bevacizumab (Avastin®), erlotinib (Tarceva®), gefitinib (Iressa®), pemetrexed (Alimta®), afatinib (Giotrif®) and/or nintedanib (Vargatef®).