Registries | Registry.cz

VINCI - Virtual patient in cardiology and diabetology

AATD registry

The AATD registry study represents a non-interventional multicenter retrospective prospective longitudinal follow-up patients with alpha-1-antitrypsin deficiency.

AKUTNE.CZ: Educational and publishing portal focusing on emergency medicine

Educational website focusing on an interactive education of emergency medicine.

Multicentric system for the assessment of the progress and results of biological therapy of ankylosing spondylitis, juvenile idiopathic arthritis, psoriatic arthritis, rheumatoid arthritis, and systemic lupus erythematosus.

BIOMARKERY PANKREAS

Evaluation of efficacy of new spectroscopic biomarkers for the detection of early-stage pancreatic cancer.

BRESCA

The BRESCA registry will obtain retrospective and prospective data of patients diagnosed with advanced breast cancer treated with targeted therapy. This clinical data source will reflect the real clinical practice of oncological therapy in the Czech Republic.

CAR-TOOL

The aim of the project is to collect and evaluate data from real clinical practice, which are related to the administration of CAR-T cell therapy in patients with certain hematological malignancies who face poor prognosis. CAR-T cell therapy is currently indicated in adult patients with certain types of non-Hodgkin's lymphoma, incl. aggressive, relapsing or refractory diffuse large B-cell lymphoma, primary mediastinal B-lymphoma, high-grade B-lymphoma, transformed follicular lymphoma and mantle cell lymphoma; and in pediatric patients and patients under 25 years of age with acute lymphoblastic leukemia (B-ALL) who do not respond to a defined number of standard therapy lines.

Cervix.cz – Cervical Cancer Screening Programme in the Czech Republic

System of informational support for the Cervical Cancer Screening Programme in the Czech Republic.

CHOPN

Non-interventional multicentre observational prospective database focusing on the collection and analysis of data on real mortality and morbidity in an unselected population of COPD patients.

CLLEAR

Clinical registry of patients with chronic lymphocytic leukaemia (CLL).

CREDIT – Czech registry of IBD patients on biological therapy

Non-interventional multicentre retrospective and prospective longitudinal monitoring of patients with inflammatory bowel disease (IBD) who have been treated with biological therapies.

CyRUS – Cystectomy Registry of the Czech Urological Society

Clinical registry monitoring cases of bladder cancers treated with cystectomy and consecutive treatment.

Czech National Haemophilia Programme (CNHP)

The Czech National Haemophilia Programme (CNHP) collects data of patients with haemophilia, von Willebrand disease and other inherited haemorrhagic disorders in the Czech Republic.

D-side

The D-side project is a research initiative of the Plastic Surgery Clinic at St. Anny and collaborates on the project with the Institute of Biostatistics and Analysis, s.r.o. Specifically, it involves the collection of clinical data of patients regarding their decision (not) to undergo preventive removal of the mammary gland.

DATOOL ALL

Clinical registry of patients with acute lymphoblastic leukaemia (ALL).

DATOOL AML

Clinical registry of patients with acute myeloid leukaemia (AML).

EndoMAZE HYBRID

Detailed assessment of safety and efficacy of hybrid ablation of persistent and long-standing persistent atrial fibrillation using a combined (hybrid) approach – surgical thoracoscopic epicardial ablation and a subsequent complex cardiological endocardial ablation.

EPOSS

Multicentre research database for implementation of parametric monitoring of severe sepsis treatment directly in clinical practice.

FAP – Familial Adenomatous Polyposis

Clinical registry of patients with familial adenomatous polyposis (FAP).

FIND

Clinical registry of haemato-oncological patients in which antimycotic therapy has been administered.

HCC VIRTUAL PATIENT

The HCC-VP.COM project presents a series of case studies of virtual patients with hepatocellular carcinoma. The interactive educational content was created for the purpose of the lifelong learning of physicians, above all in the field of oncology, and aims to develop competencies in clinical reasoning. This international project expands the range of on-line learning activities, especially for young doctors, to include gamification elements in the lifelong learning process.

IKTA.CZ

Nationwide registry of stroke patients: a non-interventional multicentre prospective study.

Infinity

Clinical registry of patients with chronic myeloid leukaemia (CML).

KARDIO-ICD – Registry of implantable cardioverter-defibrillators (ICD)

A central registry dealing with the implantation of implantable cardioverter-defibrillators (ICD).

KATAB – Registry of catheter ablations

A central registry dealing with catheter ablations.

KELLY

Registry of EGFR mutation testing results in patients with non-small-cell lung cancer (NSCLC) in the Czech Republic.

Kolorektum.cz – Colorectal Cancer Screening Programme in the Czech Republic

System of informational support for the Colorectal Cancer Screening Programme in the Czech Republic.

LEUKEMIK.CZ

Virtual patients, serious and serious games represent learning objects that are increasingly used in the lifelong education of doctors and other health professionals. The Leukemik.cz project presents a series of virtual patients - interactive case studies that allow you to go through diagnostic and therapeutic procedures for chronic myeloid leukemia (CML) and acute lymphoblastic leukemia with a positive Philadelphia chromosome (Ph+ ALL). Although the greatest application is expected mainly among hemato-oncologists, this educational IT platform can become an interesting source of information for specialists in other medical fields as well.

Mamo.cz – Breast Cancer Screening Programme in the Czech Republic

System of informational support for the Breast Cancer Screening Programme in the Czech Republic.

MDS

MDS - Clinical registry of patients with MyeloDysplastic Syndrome

MELANOM - data collection on patients with melanoma.

The MELANOM registry is a time-limited non-interventional post-authorization data collection on patients with melanoma. The project aims to monitor patients with modern expensive treatment of advanced disease and also monitoring of patients with adjuvant treatment. Data collection started in December 2020. The duration of the study is planned for 5 years (until the end of 2025).

MIND

Clinical registry of patients with myeloproliferative disorders.

MyReg – MYasthenia gravis REGistry

Registry collecting data on patients with myasthenia gravis, a rare autoimmune neuromuscular disorder

NET – NEuroendocrine Tumours

Český registr neuroendokrinních nádorů.

OBAAMA-INT

Prospective observational multinational multicentre study aiming to cover all health care facilities providing anaesthesia in the peripartal period in the Czech Republic and Slovakia, thus getting the most accurate image possible about this segment of anaesthesiology.

PID – primary immunodeficiency database

Non-interventional, multicentre, prospective study monitoring the development and treatment of congenital dysfunctions of the immune system.

Prague 18

Randomised trial comparing the effectiveness of ticagrelor and prasugrel in patients with ST segment elevation myocardial infarction (STEMI) who have been treated with primary PCI.

RCC-VP.COM - Renal Cell Carcinoma Virtual Patients

The RCC-VP.COM project presents a series of case studies of virtual patients with renal cell carcinoma. The interactive educational content was created for the purpose of lifelong learning of physicians, especially in the fields of oncology and urology, and aims to develop competencies in clinical reasoning.

Overview of current clinical registries