The parametric form of data collection, generally referred to as a “registry”, presents a suitable platform to collect medical data on both national and international levels. Electronic registries are currently considered to be the only effective way to ensure collection of complex data on patients, which might be subsequently easily interpreted, statistically analysed or interlinked with other information systems. With regard to the general availability of the Internet, the optimal technology has emerged to be an electronic registry based on a robust database, with data collection being realised via web forms, available from virtually anywhere using the internet and a web browser.
However, the use of modern information technology in medical data collection requires that a number of technological and legal requirements are met. The legal aspects are primarily concerned with personal data protection and privacy protection, which are closely linked to security of the whole system and data stored in it. The technological aspects refer to system accessibility, functionality, manageability etc.
Information technology and modern data analysis significantly enhance the effectiveness of project management, the attractiveness of such projects, and improve the handiness and utility of their outputs.
In general, good communication is essential for the success of any registry. The technological and informational background of the project must provide not only communication services, but also sufficient support to expert discussions over data collected within the projects, such as analytical outputs, automatic reporting and bulletins.
The basic prerequisites to create a successful registry are, among others: