REPAR

 Directory of registries
REPAR

Czech nationwide registry of patients who have been treated with growth hormone.

start of the project: 02/2014

The REPAR registry (REgistry of PAtients treated with gRowth hormone) is a non-interventional, nationwide, multicentre, retrospective and prospective study collecting data on patients who have been treated with growth hormone. The project was initiated and has been running under the auspices of the Czech Society of Endocrinology.

Project objectives:

  • to collect epidemiological and clinical data on patients treated with growth hormone,
  • to keep records on patients treated with growth hormone,
  • to evaluate safety and effectiveness of therapy with growth hormone for individual diagnoses,
  • to win all health care facilities providing treatment with growth hormone in the Czech Republic for a mutual cooperation,
  • to establish a Czech nationwide portal which would present the project results, and which might also serve for a mutual communication among involved centres, or for the presentation of their own activities.

Other important information:

  • Expert guarantor: Prof. Václav Hána, M.D., Ph.D., Stanislava Koloušková, M.D., Ph.D.
  • Funding: Pfizer Ltd.
  • Partners: all health care facilities providing treatment with growth hormone in the Czech Republic (you can find more detailed information – in Czech language only – on the website of the REPAR project)
  • Brief overview of results: you can find more detailed information – in Czech language only – on the website of the REPAR project
REPAR: Czech nationwide registry of patients who have been treated with growth hormone