CyRUS – Cystectomy Registry of the Czech Urological Society

Collection of data for a new project guaranteed by the Czech Urological Society - the registry of cystectomies - was launched on 1st April 2014. The project aims to develop a nationwide registry in order to build a representative data background which would allow to assess this area of cancer care. A central repository has been developed for this nationwide collection of data - a registry containing de-identified data from constituent databases, and ensuring central data validation, management, analytical processing and reporting; anonymized reporting of records from individual centres is also involved. The central repository of the system contains only de-identified data which is not provided to any other subject or third parties.

The project is also designed for the follow-up of patients after their dismissal from the hospital. In particular, the follow-up care will be monitored with respect to clinical standards.

Primary objective of the project:

• assessment of health care results, starting with cystectomy performed due to bladder cancer - time to relapse, time to progression, hospital mortality and short-term mortality, overall survival

Secondary objectives of the project:

• assessment of cystectomy incidence and prevalence rates linked to bladder cancer in catchment areas of individual urology centres in the Czech Republic
• assessment of treatment safety, treatment complications
• assessment of supportive therapy
• influence of comorbidities, dealing with them
• building a system allowing a nationwide assessment of treatment in urology centres

Other important information:

• Expert guarantor: Prof. Marek Babjuk, M.D., Ph.D. (Czech Urological Society)
• Partners: 28 urology centres in the Czech Republic (you can find more detailed information – in Czech language only – on the website of the CyRUS project)