Overview of current clinical registries

Haematology, haematological oncology

 Directory of registries

CAR-TOOL

The aim of the project is to collect and evaluate data from real clinical practice, which are related to the administration of CAR-T cell therapy in patients with certain hematological malignancies who face poor prognosis. CAR-T cell therapy is currently indicated in adult patients with certain types of non-Hodgkin's lymphoma, incl. aggressive, relapsing or refractory diffuse large B-cell lymphoma, primary mediastinal B-lymphoma, high-grade B-lymphoma, transformed follicular lymphoma and mantle cell lymphoma; and in pediatric patients and patients under 25 years of age with acute lymphoblastic leukemia (B-ALL) who do not respond to a defined number of standard therapy lines.

CLLEAR

Clinical registry of patients with chronic lymphocytic leukaemia (CLL).

Czech National Haemophilia Programme (CNHP)

The Czech National Haemophilia Programme (CNHP) collects data of patients with haemophilia, von Willebrand disease and other inherited haemorrhagic disorders in the Czech Republic.

DATOOL ALL

Clinical registry of patients with acute lymphoblastic leukaemia (ALL).

DATOOL AML

Clinical registry of patients with acute myeloid leukaemia (AML).

FIND

Clinical registry of haemato-oncological patients in which antimycotic therapy has been administered.

Infinity

Clinical registry of patients with chronic myeloid leukaemia (CML).

LEUKEMIK.CZ

Virtual patients, serious and serious games represent learning objects that are increasingly used in the lifelong education of doctors and other health professionals. The Leukemik.cz project presents a series of virtual patients - interactive case studies that allow you to go through diagnostic and therapeutic procedures for chronic myeloid leukemia (CML) and acute lymphoblastic leukemia with a positive Philadelphia chromosome (Ph+ ALL). Although the greatest application is expected mainly among hemato-oncologists, this educational IT platform can become an interesting source of information for specialists in other medical fields as well.

MDS

MDS - Clinical registry of patients with MyeloDysplastic Syndrome

 

MIND

Clinical registry of patients with myeloproliferative disorders.

RMG – Registry of Monoclonal Gammopathies

International clinical registry of patients with monoclonal gammopathies.